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Welcome to Help4HD-International.org
My name is Melissa Biliardi, and I am a mom and caregiver of my son
who is suffering from the devastating symptoms of Huntington's
disease. In 2008 when he was diagnosed, he asked me to find his
community. What I found was a warm and loving family of H'Dears and
JH'Dears across the country and around the world, all related by this
one gene called Huntingtin.
As the founder of Help 4 HD International: Help 4 HD Support Groups;
Help 4 HD - The HD View, Help 4 HD News Channel on BlogTalkRadio;
Research4HD and The Huntington's Post websites, I have observed
that there is a great need in the community for support and resources
and so this is my first attempt to collaborate with other grassroots
organizations to collectively and cooperatively provide help and hope
to the community.
Help 4 HD International is a grassroots non-profit organization with a
mission to help the juvenile Huntington's disease (JHD) and adult
Huntington's disease (HD) community with support, education,
resources, information and entertainment. In the weeks, months, years
to come more information and education will be discovered and with
that knowledge, we will update these websites, across all social
networks, Facebook pages, groups and radio site. For more
information, programs and news, please visit these Help 4 HD
International websites:
www.BlogTalkRadio.com/Help4HD
www.Research4HD.org
www.TheHuntingtonsPost.org
www.Hdsgccc.Blogspot.com
My name is Melissa Biliardi, and I am a mom and caregiver of my son
who is suffering from the devastating symptoms of Huntington's
disease. In 2008 when he was diagnosed, he asked me to find his
community. What I found was a warm and loving family of H'Dears and
JH'Dears across the country and around the world, all related by this
one gene called Huntingtin.
As the founder of Help 4 HD International: Help 4 HD Support Groups;
Help 4 HD - The HD View, Help 4 HD News Channel on BlogTalkRadio;
Research4HD and The Huntington's Post websites, I have observed
that there is a great need in the community for support and resources
and so this is my first attempt to collaborate with other grassroots
organizations to collectively and cooperatively provide help and hope
to the community.
Help 4 HD International is a grassroots non-profit organization with a
mission to help the juvenile Huntington's disease (JHD) and adult
Huntington's disease (HD) community with support, education,
resources, information and entertainment. In the weeks, months, years
to come more information and education will be discovered and with
that knowledge, we will update these websites, across all social
networks, Facebook pages, groups and radio site. For more
information, programs and news, please visit these Help 4 HD
International websites:
www.BlogTalkRadio.com/Help4HD
www.Research4HD.org
www.TheHuntingtonsPost.org
www.Hdsgccc.Blogspot.com
Huntington’s disease (HD) is a fatal hereditary
brain disease. Children of an HD parent have a
50/50 chance of inheriting the gene mutation.
Huntington’s disease is caused by a autosomal
dominant gene mutation on chromosome 4 which
means that it does not skip generations. Juvenile
Huntington’s disease (JHD) is more virulent and
devastating with seizures, dystonia and many
other horrible and painful manifestations. Genetic
testing is considered usually when a person
presents with family history and symptoms
which could be psychiatric, cognitive and
movement disorders. Although a small percent of
spontaneous cases do occur, about 1 in 10,000
people in the USA have HD with another 250,000
at risk. If that’s true in the rest of the world, that
means about 1.4 million people in the world have
Huntington’s disease (HD) with about 10% in the
juvenile population (JHD).
brain disease. Children of an HD parent have a
50/50 chance of inheriting the gene mutation.
Huntington’s disease is caused by a autosomal
dominant gene mutation on chromosome 4 which
means that it does not skip generations. Juvenile
Huntington’s disease (JHD) is more virulent and
devastating with seizures, dystonia and many
other horrible and painful manifestations. Genetic
testing is considered usually when a person
presents with family history and symptoms
which could be psychiatric, cognitive and
movement disorders. Although a small percent of
spontaneous cases do occur, about 1 in 10,000
people in the USA have HD with another 250,000
at risk. If that’s true in the rest of the world, that
means about 1.4 million people in the world have
Huntington’s disease (HD) with about 10% in the
juvenile population (JHD).
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